Investigator Awards In Health Policy Research Investigator Awards in Health Policy Research
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Research In Profile is a series of pieces about investigators and their work that focuses on project findings, research insights, and policy implications. Summaries are provided on the website and each issue is available for download in Adobe Acrobat PDF format. Print copies can be requested from the National Program Office by sending an email to depdir@ifh.rutgers.edu.
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Ten New Research Projects Explore Solutions to America’s Pressing Health Care Challenges
Investigator Awards In Health Policy Research
Issue 30, September 2010
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With the passage of comprehensive health reform, the United States must redouble efforts to address our most vexing health policy issues. The need for innovative, cross-cutting health policy research is more urgent than ever. The Robert Wood Johnson Foundation (RWJF) recently announced the selection of this year’s recipients of the RWJF Investigator Awards in Health Policy Research - scholars who will tackle some of America’s most difficult health concerns and inform policy on these issues. The winning scholars, affiliated with major institutions across the country, will receive awards of up to $335,000 to support 10 innovative and cutting-edge research projects. The award recipients are:

  • Co-investigators Joel T. Braslow, M.D., Ph.D., University of California, Los Angeles, and John S. Brekke, Ph.D., University of Southern California
  • Cynthia A. Connolly, Ph.D., R.N., P.N.P., University of Pennsylvania
  • Jennifer L. Hochschild, Ph.D., Harvard University
  • James S. Jackson, Ph.D., University of Michigan
  • Aaron S. Kesselheim, M.D., J.D., M.P.H., Harvard University and Brigham and Women’s Hospital
  • Miriam J. Laugesen, Ph.D., Columbia University
  • Co-investigators Jens Ludwig, Ph.D., University of Chicago, and Greg J. Duncan, Ph.D., University of California, Irvine
  • S. V. Subramanian, Ph.D., M.Phil., Harvard University
  • Co-investigators Jason Schnittker, Ph.D., University of Pennsylvania, and Christopher Uggen, Ph.D., University of Minnesota
  • Co-investigators Robert L. Wears, M.D., University of Florida, and Kathleen M. Sutcliffe, Ph.D., University of Michigan

This prestigious and highly competitive funding program attracts investigators from a wide range of fields including medicine, nursing, public health, economics, sociology, political science, psychology, history, law, ethics, journalism, communications, public and social policy, and others. A national advisory committee of distinguished experts from fields similar to those of the investigators reviews applications and makes funding recommendations to the Foundation. The members of the 2009-2010 national advisory committee (NAC), which includes seven past Investigator Awardees, are:

  • Paul D. Cleary, Ph.D., Yale University, NAC Chair
  • Sheila Burke, R.N., M.P.A., Harvard University
  • Lawrence Casalino, M.D., Ph.D., Weill Cornell Medical College, 1999 Awardee
  • Susan Dentzer, Health Affairs
  • Judy Feder, Ph.D., Georgetown University
  • Bruce G. Link, Ph.D., Columbia University, 1995 Awardee
  • Catherine G. McLaughlin, Ph.D., Mathematica Policy Research, Inc.
  • Mark A. Peterson, Ph.D., University of California, Los Angeles, 1994 Awardee
  • Jill B. Quadagno, Ph.D., Florida State University, 1999 Awardee
  • Jeannette Rogowski, Ph.D., University of Medicine and Dentistry of New Jersey
  • Sara Rosenbaum, J.D., George Washington University, 2000 Awardee
  • Mark J. Schlesinger, Ph.D., Yale University, 1993 Awardee
  • Alvin R. Tarlov, M.D., University of Chicago (retired)
  • William A. Vega, Ph.D., University of Southern California
  • Keith A. Wailoo, Ph.D., Princeton University, 2001 Awardee

RWJF created the Investigator Awards in Health Policy Research program to support talented researchers throughout the stages of their careers whose cross-cutting and bold new ideas promise to contribute meaningfully to improving U.S. health policy. Funded projects produce enduring insights and sophisticated analyses of pressing problems, potential solutions for improving health and health care, and evidence that can inform policymakers, the media, and the public. Since 1992, the Foundation has supported 167 projects involving 216 investigators.

“Through the Investigators’ program, the Foundation invests in ideas and individuals – investments that pay off long after the research grants have ended,” said Lori Melichar, Ph.D., economist and senior program officer in Research and Evaluation at RWJF. “The books and articles resulting from Investigators’ research contribute to the public discourse in health policy. The program also provides the Investigators with opportunities to join the debate on health policy issues, and influence how policymakers think about the challenges of providing and financing health care and improving the health of the nation.”

David Mechanic, Ph.D., leads the RWJF Investigator Awards program, which is headquartered at the Institute for Health, Health Care Policy, and Aging Research at Rutgers, The State University of New Jersey. “This program supports thinking that is creative and crosses disciplinary boundaries in search of knowledge and solutions to emerging problems or vexing issues that are important for improving the nation’s health and health care,” Mechanic says.

A brief description of each new investigator project follows.

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Policy Challenges in Modern Health Care
Mechanic, D., Rogut, L., Colby, D., Knickman, J., editors
Published: 2005
Rutgers University Press
A composite look at some of the striking contemporary challenges we face in health and health care by some of the nation's leading thinkers.
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Praise for Policy Challenges in Modern Health Care

"A marvelous collection of ideas and insights by first-rate scholars. This book lays a foundation for more creative and effective policy-making." - Stephen M. Shortell, Dean and Blue Cross of California Professor of Health Policy and Management, University of California, Berkeley

Health care delivery in the United States is an enormously complex enterprise, and its $1.6 trillion annual expenditures involve a host of competing interests. While arguably the nation offers among the most technologically advanced medical care in the world, the American system consistently under performs relative to its resources. Gaps in financing and service delivery pose major barriers to improving health, reducing disparities, achieving universal insurance coverage, enhancing quality, controlling costs, and meeting the needs of patients and families.

Bringing together twenty-five of the nation's leading experts in health care policy and public health, this book provides a much-needed perspective on how our health care system evolved, why we face the challenges that we do, and why reform is so difficult to achieve. The essays tackle tough issues including: socioeconomic disadvantage, tobacco, obesity, gun violence, insurance gaps, the rationing of services, the power of special interests, medical errors, and the nursing shortage.

Linking the nation's health problems to larger political, cultural, and philosophical contexts, Policy Challenges in Modern Health Care offers a compelling look at where we stand and where we need to be headed.

(Rutgers University Press, rutgerspress.rutgers.edu)(ISBN:0-8135-3578-6)

Section Info
Investigator publications listed on this site relate to research funded through the Investigator Awards program. References are provided for books and selected journal articles written by the investigators. Abstracts are available for some featured publications.
Going Solo: The Extraordinary Rise and Surprising Appeal of Living Alone
Klinenberg, E.
Published: 2012
The Penguin Press
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Renowned sociologist and author Eric Klinenberg explores the dramatic rise of solo living and examines the seismic impact it's having on our culture, business, and politics. Conventional wisdom tells us that living by oneself leads to loneliness and isolation, but, as Klinenberg shows, most solo dwellers are deeply engaged in social and civic life. In fact, compared with their married counterparts, they are more likely to eat out and exercise, go to art and music classes, attend public events and lectures, and volunteer. There's even evidence that people who live alone enjoy better mental health than unmarried people who live with others and have more environmentally sustainable lifestyles than families, since they favor urban apartments over large suburban homes.

It is now more common for an American adult to live alone than with family or a roommate, and Klinenberg analyzes the challenges and opportunities these people face: young professionals who pay higher rent for the freedom and privacy of their own apartments; singles in their thirties and forties who refuse to compromise their career or lifestyle for an unsatisfying partner; divorced men and women who no longer believe that marriage is a reliable source of happiness or stability; and the elderly, most of whom prefer living by themselves to living with friends or their children. Living alone is more the rule than the exception in places like Manhattan, half of whose residents live by themselves, and many of America's largest cities, where more than a third of the population does. Drawing on over three hundred interviews with men and women of all ages and every class who live alone, Klinenberg reaches a startling conclusion: In a world of ubiquitous media and hyperconnectivity, this way of life helps us discover ourselves and appreciate the pleasure of good company.

With eye-opening statistics, original data, and vivid portraits of people who go solo, Klinenberg upends the conventional wisdom to deliver the definitive take on how the rise of living alone is transforming the American experience. Going Solo is a powerful- and necessary-assessment of an unprecedented social change.

Great American City: Chicago and the Enduring Neighborhood Effect
Sampson, R.J.
Published: 2012
U of Chicago Press
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For over fifty years numerous public intellectuals and social theorists have insisted that community is dead. Some would have us believe that we act solely as individuals choosing our own fates regardless of our surroundings, while other theories place us at the mercy of global forces beyond our control. These two perspectives dominate contemporary views of society, but by rejecting the importance of place they are both deeply flawed. Based on one of the most ambitious studies in the history of social science, Great American City argues that communities still matter because life is decisively shaped by where you live.

To demonstrate the powerfully enduring impact of place, Robert J. Sampson presents here the fruits of over a decade’s research in Chicago combined with his own unique personal observations about life in the city, from Cabrini Green to Trump Tower and Millennium Park to the Robert Taylor Homes. He discovers that neighborhoods influence a remarkably wide variety of social phenomena, including crime, health, civic engagement, home foreclosures, teen births, altruism, leadership networks, and immigration. Even national crises cannot halt the impact of place, Sampson finds, as he analyzes the consequences of the Great Recession and its aftermath, bringing his magisterial study up to the fall of 2010.

Following in the influential tradition of the Chicago School of urban studies but updated for the twenty-first century, Great American City is at once a landmark research project, a commanding argument for a new theory of social life, and the story of an iconic city.

Testing Baby: The Transformation of Newborn Screening, Parenting, and Policymaking
Grob, R.
Published: 2011
Rutgers University Press
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Within 48 hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized.

Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter many things including family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates.

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Patients as Policy Actors
Hoffman, B., Tomes, N., Schlesinger, M., Grob, R. editors
Published: 2011
Rutgers University Press
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Praise: "This strong volume brings together contributors of different disciplinary and experiential backgrounds, broadening our understanding of how patient voices influence American health care policy.""—Elizabeth Toon, Centre for the History of Science, Technology and Medicine, University of Manchester

Description: Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.

About the Editors: BEATRIX HOFFMAN is an associate professor and chair of the department of history at Northern Illinois Unversity. She is author of The Wages of Sickness: The Politics of Health Insurance in Progressive America. NANCY TOMES is a professor in the history department at Stony Brook University. She is the author of several books,among them, The Gospel of Germs: Men, Women, and the Microbe in American Life. RACHEL GROB is an associate dean of graduate studies, director of the Child Development Institute and healthy advocacy faculty member at Sarah Lawrence College. She is author of Testing Baby: The Transformation of New Born Screening, Parenting, and Policymaking (Rutgers Press, forthcoming). MARK SCHLESINGER is a professor of health policyand a fellow of the Institution for Social and Policy Studies at Yale University and past editor of the Journal of Health Policy, Politics and Law.

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Fatal Invention
Roberts, D.
Published: 2011
The New Press
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A decade after the Human Genome Project proved that human beings are not naturally divided by race, the emerging fields of personalized medicine, reproductive technologies, genetic genealogy, and DNA databanks are attempting to resuscitate race as a biological category written in our genes. In this provocative analysis, leading legal scholar and social critic Dorothy Roberts argues that America is once again at the brink of a virulent outbreak of classifying population by race. By searching for differences at the molecular level, a new race-based science is obscuring racism in our society and legitimizing state brutality against communities of color at a time when America claims to be post-racial.

Moving from an account of the evolution of race—proving that it has always been a mutable and socially defined political division supported by mainstream science—Roberts delves deep into the current debates, interrogating the newest science and biotechnology, interviewing its researchers, and exposing the political consequences obscured by the focus on genetic difference. Fatal Invention is a provocative call for us to affirm our common humanity.

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Drug Policy and the Public Good
Babor, T.F., Caulkins, J.P., Edwards, G., Fischer, B., Foxcroft, D.R., Humphreys, K., Obot, I.S., Rehm, J., Reuter, P., Room, R., Rossow, I., Strang, J.
Published: 2010
Oxford University Press
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Drug use represents a significant burden to public health through disease, disability and social problems, and policy makers are becoming increasingly interested in how to develop evidence-based drug policy. It is therefore crucial to strengthen the links between addiction science and drug policy. Drug Policy and the Public Good is collaboratively written by an international group of career scientists to provide an analytical basis on which to build relevant global drug policies, and to inform policy makers who have direct responsibility for public health and social welfare.

Drug Policy and the Public Good presents, in a comprehensive, practical, and readily accessible form, the accumulated scientific knowledge on illicit drugs that has direct relevance to the development of drug policy on local, national, and international levels. The authors describe the conceptual basis for a rational drug policy and present new epidemiological data on the global dimensions of drug misuse. The core of the book is a critical review of the cumulative scientific evidence in five general areas of drug policy: primary prevention programs in schools and other settings; supply reduction approaches, including drug interdiction and legal enforcement; treatment interventions and harm reduction approaches; criminal sanctions and decriminalization; and control of the legal market through prescription drug regimes. The final chapters discuss the current state of drug policy in different parts of the in different parts of the world, and describe the need for a new approach to drug policy that is evidence-based, realistic, and co-ordinated.

The authors describe the conceptual basis for a rational drug policy and present new epidemiological data on the global dimensions of drug misuse. The core of the book is a critical review of the cumulative scientific evidence in five general areas of drug policy: primary prevention programs in schools and other settings; supply reduction approaches, including drug interdiction and legal enforcement; treatment interventions and harm reduction approaches; criminal sanctions and decriminalization; and control of the legal market through prescription drug regimes. The final chapters discuss the current state of drug policy in different parts of the world, and describe the need for a new approach to drug policy that is evidence-based, realistic, and co-ordinated.

By locating drug policy primarily within the realm of public health, this book draws attention to the growing tendency of governments, both national and local, to consider illegal psychoactive substances as a major determinant of ill health, and to organize societal responses accordingly. It will appeal to those involved in both addiction science and drug policy, as well as those in the wider fields of public health, health policy, epidemiology, primary prevention, and treatment services.

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Reputation and Power: Organizational Image and Pharmaceutical Regulation at the FDA
Carpenter, D.P.
Published: 2010
Princeton University Press
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The U.S. Food and Drug Administration is the most powerful regulatory agency in the world. How did the FDA become so influential? And how exactly does it wield its extraordinary power? Reputation and Power traces the history of FDA regulation of pharmaceuticals, revealing how the agency's organizational reputation has been the primary source of its power, yet also one of its ultimate constraints.

Daniel Carpenter describes how the FDA cultivated a reputation for competence and vigilance throughout the last century, and how this organizational image has enabled the agency to regulate an industry as powerful as American pharmaceuticals while resisting efforts to curb its own authority. Carpenter explains how the FDA's reputation and power have played out among committees in Congress, and with drug companies, advocacy groups, the media, research hospitals and universities, and governments in Europe and India. He shows how FDA regulatory power has influenced the way that business, medicine, and science are conducted in the United States and worldwide. Along the way, Carpenter offers new insights into the therapeutic revolution of the 1940s and 1950s; the 1980s AIDS crisis; the advent of oral contraceptives and cancer chemotherapy; the rise of antiregulatory conservatism; and the FDA's waning influence in drug regulation today.

Reputation and Power demonstrates how reputation shapes the power and behavior of government agencies, and sheds new light on how that power is used and contested.

Daniel P. Carpenter is the Allie S. Freed Professor of Government at Harvard University. He is the author of The Forging of Bureaucratic Autonomy: Reputations, Networks, and Policy Innovation in Executive Agencies, 1862-1928 (Princeton).

Endorsements:

"Reputation and Power is by far the most thorough and penetrating study of the most powerful and important regulatory agency in the world--the U.S. Food and Drug Administration--and one of the best studies of any American regulatory agency. The book is essential reading for anyone seriously interested in American politics, public policy, administrative institutions, or health and medicine. This is an extraordinary work."--Paul Quirk, University of British Columbia

"Carpenter has integrated an understanding of the FDA's legal history and programmatic responsibilities with a perceptive grasp of the personalities who shaped that history. His work surpasses in depth and scope all other accounts of the FDA with which I am familiar. No one in the future will be able to write seriously about the FDA's drug approval system without taking account of Carpenter's work. His curiosity knows no limits."--Richard A. Merrill, professor emeritus, University of Virginia

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Democracy Remixed: Black Youth and the Future of American Politics
Cohen, C.J.
Published: 2010
Oxford University Press
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While Barack Obama's victory led many to believe that America's racial divide had significantly narrowed, if not been eliminated, the facts belie this. Black youth today continue to be plagued by low levels of employment, high levels of incarceration, and a profound lack of trust in the government and broader political community. Yet discussions of why this is have been largely anecdotal, often putting the blame on black youth themselves--even when the commentators are also black. Think of Bill Cosby's criticism, for example, or the writings of Stanley Crouch and Juan Williams.

In Democracy Remixed, award-winning scholar Cathy J. Cohen offers an authoritative and empirically powerful analysis of the state of black youth in America today. Utilizing the results from the Black Youth Project, a groundbreaking nationwide survey, Cohen focuses on what young Black Americans actually experience and think--and underscores the political repercussions. Featuring their stories from cities across the country, she reveals that black youth want, in large part, what most Americans want--a good job, a fulfilling life, safety, respect, and equality. But while this generation shares much in common with the rest of America, they also believe that equality does not yet exist, at least not in their lives. Many believe that they are treated as second-class citizens. Moreover, for many the future seems bleak when they look at their neighborhoods, their schools, and even their own lives and choices. Through their words, these young people provide a complex and balanced picture of the intersection of opportunity and discrimination in their lives.

The political alienation and hope of black youth is real--and it is grounded in a contradictory reality that must be addressed. Democracy Remixed provides the insight and information necessary to truly transform the future of young Black Americans and American democracy.

Cathy J. Cohen is the David and Mary Winton Green Professor of Political Science at the University of Chicago. She is the author of The Boundaries of Blackness: AIDS and the Breakdown of Black Politics, and co-editor of Women Transforming Politics: An Alternative Reader.

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Health Care in World Cities: New York, Paris, and London
Gusmano, M.K., Rodwin, V.G., Weisz, D.
Published: 2010
Johns Hopkins University Press
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New York. London. Paris. Although these cities have similar sociodemographic characteristics, including income inequalities and ethnic diversity, they have vastly different health systems and services. This book compares the three and considers lessons that can be applied to current and future debates about urban health care.

Highlighting the importance of a national policy for city health systems, the authors use well—established indicators and comparable data sources to shed light on urban health policy and practice. Their detailed comparison of the three city health systems and the national policy regimes in which they function provides information about access to health care in the developed world's largest cities.

The authors first review the current literature on comparative analysis of health systems and offer a brief overview of the public health infrastructure in each city. Later chapters illustrate how timely and appropriate disease prevention, primary care, and specialty health care services can help cities control such problems as premature mortality and heart disease.

In providing empirical comparisons of access to care in these three health systems, the authors refute inaccurate claims about health care outside of the United States.

Michael K. Gusmano, Ph.D., is a research scholar at The Hastings Center. Victor G. Rodwin, Ph.D., M.P.H., is a professor of health policy and management at New York University. Daniel Weisz, M.D., M.P.A., is a research associate at the World Cities Project, International Longevity Center, of which Drs. Gusmano and Rodwin are codirectors.

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Medical Professionalism in the New Information Age
Rothman, D.J., Blumenthal, D. editors
Published: 2010
Rutgers University Press
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Praise:

"Rothman and Blumenthal's compelling book, Medical Professionalism in the New Information Age, fills a current gap in the literature on the possible implications of information technology for practicing physicians, health care organizations, and the profession more generally, thereby advancing both policy analysis and clinical practice."—Melissa Goldstein, George Washington University Medical Center

Description:

With computerized health information receiving unprecedented government support, a group of health policy scholars analyze the intricate legal, social, and professional implications of the new technology. These essays explore how Health Information Technology (HIT) may alter relationships between physicians and patients, physicians and other providers, and physicians and their home institutions. Patient use of web-based information may undermine the traditional information monopoly that physicians have long enjoyed. New IT systems may increase physicians’ legal liability and heighten expectations about transparency. Case studies on kidney transplants and maternity practices reveal the unanticipated effects, positive and negative, of patient uses of the new technology. An independent HIT profession may emerge, bringing another organized interest into the medical arena. Taken together, these investigations cast new light on the challenges and opportunities presented by HIT.

About the Editors:

DAVID J. ROTHMAN is president of the Institute on Medicine as a Profession (IMAP) and Bernard Schoenberg Professor of Social Medicine at Columbia College of Physicians & Surgeons. His many books include Strangers at the Bedside and The Pursuit of Perfection with Sheila M. Rothman.

DAVID BLUMENTHAL is national coordinator for health information technology in the Department of Health and Human Services. When he contributed to this volume, he was director of the Institute for Health Policy at Massachusetts General Hospital/Partners HealthCare System and professor of health care policy and Samuel O. Thier Professor of Medicine at Harvard Medical School.